Arthurs Quest

Dragon Boat Race
2024-09-01 | Watergate (Big Bridge) Tonbridge High Street., The Big Bridge, Tonbridge, TN9 1DR
Dragon Boat Race – poster attached – September 1st, 2024. Arthur’s Quest has teamed up with fellow disability charity Space 2 be me (www.space2beme.org.uk) to win the Tonbridge annual Dragon Boat Race on the River Medway. This will be an exciting fundraising competitive event, as teams battle it out through several heats to win the competition. We will have a total of 17 people in any one race, including 16 paddlers and a pace keeping drummer. We will have a stand along the castle wall, which will also be the teams base. This is a free event, so please do come along and support us on the day!
If you are interested in being part of the team, please get in touch here.
We must mention our proud event sponsors, without their support the event would not be possible. A huge thank you to:

Verdigris – offering casual riverside dining at its best! Relax by the river overlooking Tonbridge Castle and watch the world go by. Food and our kitchen is the very heart of Verdigris. We really truly believe this. With our new adventure in food we are looking at local and seasonal dishes designed to share with friends, family and loved ones. Our menu will adapt with the seasons and availability of produce. This is the way we wish to be…. always changing, always moving, always exciting. Life can be a beautiful journey and we believe wine should be too, and so we have a masterfully created wine list available, as well as expertly prepared cocktails.

Widgit – InPrint 3 | Design Symbol Materials to Print : We are Widgit, a pioneering software company with a passion for symbols-based communication. We empower individuals to express themselves independently through symbols, aiding comprehension and understanding across any environment. We primarily cater to individuals with communication difficulties of all ages, including autistic people, learning disabilities, and speech impairments. Our solutions are designed to support educators, therapists, and caregivers by enhancing inclusive learning environments while promoting meaningful interactions. (logo attached)
Our Widgit Online and InPrint software give users access to our entire symbol language, designed to meet the unique needs of symbol users across a multitude of settings. From flashcards to vocabulary lists to fully symbolised books, our solutions make it easy to personalise a wide range of materials – helping to facilitate communication in the everyday world.

BIGBLUE – We deliver executive search and recruitment expertise to the design, property, and construction industry. Our extensive experience and unrivalled market knowledge have helped build the teams behind leading companies in the design and construction industry today. (logo attached)
The recruitment process should be an enjoyable and efficient experience for all involved.
Genial consultants attract like-minded candidates. Our key driver is transforming the way people work by connecting two dynamic forces together; that is when things start to get exciting and workplace transformation can begin.

Absolute Creative Print – Digital Printing Solutions in Kent : Absolute Creative Print have been designing and printing across Kent and the South East since 2010, with a great ethos where no job is too big or small. With continued investments in the latest technology, we have transformed from a small copy shop to an on-demand design, print and display company. Working on a variety of projects, we are here to assist and work alongside you to create the best possible solution for your business. (pending logo)

Control Energy Costs Ltd – Control Energy Costs has been in the energy business since 1981, this means we truly understand the energy market. Our business is to provide you with a complete end-to-end energy service. We support clients with the implementation of carbon solutions to drive Net Zero, as well as mitigate the uncertainty of fluctuating energy costs, identify savings opportunities, manage consumption effectively and undertake utility connections and siteworks projects.

15th European Epilepsy Congress
2024-09-07 - 2024-09-11 | The Roma Convention Center La Nuvola, Viale Asia, 40 /44, Roma, Metropolitan City of Rome Capital, 00144, Italy
Arthur’s Quest, European SLC6A1 counterparts, researchers and clinicians will come together for an informative 90 minute educational session covering 4 or 5 topics spanning the work being done to improve outcomes for people with SLC6A1. Lindsay Randall will be chairing this event.

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The World Orphan Drug Congress 2024
2024-10-22 - 2024-10-25 | Fira de Barcelona – Montjuïc – Hall 2, C/ de Lleida, 4, (Entrance off Lleida Street), Barcelona, Select a State:, 08004, Spain
THE MOST IMPORTANT ORPHAN DRUG EVENT WORLDWIDE
The World Orphan Drug Congress is an award-winning event with an exhibition that has grown to become the largest and most established orphan drugs & rare diseases meeting of its kind across the globe.Following a record attendance in 2023 of 1500+ attendees, the World Orphan Drug Congress will be back in October 2024 bringing together the most senior and informed industry experts across the entire orphan drug and rare disease landscape.​
We will continue to cover orphan drug progress in:
Cell & Gene Therapy
Gene Testing
Market Access
Epidemiology & Forecasting
Real World Evidence
Global Patient Advocacy
Orphan Drugs Policy
and more
From basic research to commercial manufacture, this one meeting covers the​ whole orphan drugs value chain where science, government and manufacturers all​ come together to create ground- breaking progress.​If you are involved in orphan drugs & ATMP, this is the​ most important meeting you will be part of in 2024.​
HOW TO GET THERE
How to get there – Guest Events (firabarcelona.com)

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SLC6A1connect symposium 2024
2024-12-04 - 2024-12-05 | Metropolitan City of Rome Capital
Details TBC soon

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AES Annual Meeting 2024
2024-12-06 - 2024-12-10 | Metropolitan City of Rome Capital
Join us in Los Angeles this December for the best in epilepsy education, science, and networking!
The AES Annual Meeting brings together healthcare providers, scientists, advocates, industry, and other professionals dedicated to better outcomes for people with epilepsy.
Information about AES 2024 will be available soon. Sign up here to receive an email notification when registration opens!
The AES Annual Meeting is the premier event for healthcare providers, scientists, advocates, industry, and other professionals dedicated to better outcomes for people with epilepsy.
The meeting boasts five days of top-notch live educational content, cutting-edge science, new tools and technologies, and energy and community you won’t find anywhere else.

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SLC6A1 Europe 2025 Inaugural Scientific Symposium and Family Conference
2025-08-29 | Vila Gale Opera, Vila Gale Opera, Travessa Conde Da Ponte, Lisbon,, Lisbon, 1300-141, Portugal
Welcome to the INAUGURAL EUROPEAN SYMPOSIUM SLC6A1! Join us for an exciting in-person gathering at Hotel Vila Galé Ópera. This symposium is a fantastic opportunity to delve into the latest research and advancements in SLC6A1 related disorders. Connect with fellow professionals, share insights, and collaborate on potential treatments and ground breaking ideas. Engagement with families affected by SLC6A1 in the family room and Rare Reception will offer greater understanding and insight in to the disease phenotype and the unmet needs of this community, as well as amplifying the patient voice. Don’t miss out on this unique event!
There will be two presentation rooms at the event, a family room and a scientific room.

The family room will present research and scientific projects in a way that is broken down into less scientific jargon, so that it is more accessible to the family community.
The scientific room will allow researchers and alike to really showcase their projects in greater detail to a multidisciplinary audience, offering rich opportunity for further sharing, collaboration and partnership. Ultimately aiming to push boundaries and change lives for the SLC6A1 community.
Families are invited to attend a family bonding day on August 28th, starting out at the event hotel at 10am. The symposium team will facilitate the initial meeting, encouraging families to take up this unique opportunity to meeting and build lasting relationships with other families that have experienced exactly the experiences as eachother. Learn, share and support eachother.
Children are also welcome at the event, although we understand some may find the environment of the symposium a challenge (or just plain boring!). Once you have made some connections, you are free to explore what Portugal has to offer and venture out together. There is a large park near the hotel.
Join us for a Rare Reception in or close to the symposium venue. Offering a unique opportunity for families and professionals to unwind, mingle and get to know each other, learn from each other and foster collaboration in a fun and relaxed atmosphere.

Scientific registration is for :
1 day – 8.00am to 5.00pm
Includes light breakfast of pastries, hot and cold drinks, lunch, coffee breaks, and full agenda of scientific presentations and networking opportunities, plus the chance to meet families affected by SLC6A1
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Family Registration is for:
2 days
Families are invited to attend on the 28th August for an informal day of meeting other families and bonding. Some families will bring their SLC6A1 loved ones with them, others will leave them at home, and everyone is welcome.
29th is the family conference which includes:
8.00am to 5.00pm conference
Includes light breakfast of pastries, hot and cold drinks, lunch, coffee breaks, and full agenda of scientific information presented in an accessible way for the patient community. Opportunities to mingle with other families, ask questions and meet the experts trying to navigate the way to therapies for our loved ones, that address the unmet needs of SLC6A1 related disorders.
There will be an accessible respite room for families to take breaks in throughout the day as needed.
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Book Your Room:
25 rooms are available at the hotel.
Click here to view available options.
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Rare Reception:
Drinks reception 5pm to late, venue tbc.
Register your interest in attending this Rare Reception in or close to the symposium venue. Offering a unique opportunity for families and professionals to unwind, mingle and get to know each other, learn from each other and foster collaboration in a fun and relaxed atmosphere.
FREE
SCIENTIFIC REGISTRATIONFAMILY REGISTRATIONBOOK YOUR ROOMRARE RECEPTION

36th International Epilepsy Congress
2025-08-30 - 2025-09-03 | Lisbon, 36th International Epilepsy Congress, Lisbon, Portugal
This event will showcase the best in current knowledge and developments in the epilepsy world.
SLC6A1 Special Interest Session is bright and early, 8am to 9.30am Monday 1st September.
Special Interest Session 3
Session title: Epilepsy and neurodevelopmental comorbidities of SLC6A1-related disorders
Chair: Vincenzo Crunelli (United Kingdom)
Parenting siblings with SLC6A1 mutations and strategy of patient organisations – Lindsay Randall (United Kingdom)
From genotype to protein structure to phenotype in SLC6A1-related disorders – Dennis Lal (USA)
Non-seizure characteristics of SLC6A1-related neurodevelopmental disorders – Katrine Marie Johannesen (Denmark)
SLC6A1 function in health and disease using GABASnFR – Chris Dulla (USA)
Targeting astrocytic GAT1 dysfunction rescues absence seizures and their comorbidities – Tatiana Morais (Portugal)
Register for the event here:
https://www.ilae.org/congresses/36th-international-epilepsy-congress/section/sectionid/3
SCIENTIFIC REGISTRATION

Dragon Boat Race 2025
2025-09-07 | Watergate (Big Bridge) Tonbridge High Street., The Big Bridge, Tonbridge, TN9 1DR
This year Arthur’s Quest has teamed up with friend and supporter Gavin Boyce, who is also supporting the Carly Heart Trust and slc6a1 connect uk after a close shave with the other side many years ago. Thanks to advanced technology, his ticker is kept on track by an internal defibrillator. We will be sharing our boat and proceeds from this high speed thrill ride of a fundraiser.
Support us with sponsorship, and join us on the day at:
Tonbridge Castle riverside, Kent, UK. Sunday 7th September 2025.
See our peoples fundraising page for details.

The World Orphan Drug Congress 2025 | Workshop Day
2025-10-27 - 2025-10-29 | RAI Congress Centre, Amsterdam, RAI Congress Centre, Europaplein 24, 1078 GZ Amsterdam, Amsterdam, Netherlands
THE MOST IMPORTANT ORPHAN DRUG EVENT WORLDWIDE
27 October 2025 | Workshop Day
28-29 October 2025 | Conference & Exhibition
RAI Congress Centre, Amsterdam
Strategy, Advocacy & Partnering For The Global Orphan Drug Industry
Register Now
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The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe.
From cell and gene therapy, genetic testing, and market access, to real world evidence, this one meeting covers the whole orphan drugs value chain where science, government and manufacturers all come together to create groundbreaking progress.
We will continue to cover orphan drug progress in:
Cell & Gene Therapy
Gene Testing
Market Access
Epidemiology & Forecasting
Real World Evidence
Global Patient Advocacy
Orphan Drugs Policy
and more

DONATE

AES Annual Meeting 2025
2025-12-05 - 2025-12-09 | Metropolitan City of Rome Capital
The AES Annual Meeting brings together healthcare providers, scientists, advocates, industry, and other professionals dedicated to better outcomes for people with epilepsy.
We look forward to exchanging ideas, sharing and celebrating scientific breakthroughs, and building professional connections that sustain and strengthen our field and our impact as a global epilepsy community. Join us.
Join us in Atlanta this December for the best in epilepsy education, science, and networking!

The AES Annual Meeting brings together healthcare providers, scientists, advocates, industry, and other professionals dedicated to better outcomes for people with epilepsy.
The AES Annual Meeting is the premier event for healthcare providers, scientists, advocates, industry, and other professionals dedicated to better outcomes for people with epilepsy.
The meeting boasts five days of top-notch live educational content, cutting-edge science, new tools and technologies, and energy and community you won’t find anywhere else.
Register Now
Register and book your hotel today—rooms are booking quickly!
Join us in December for the largest epilepsy-focused event in the US.
Enjoy top-notch learning that will help you stay on the cutting edge of epilepsy science and care—no matter your career stage! In-person and on-demand options are available.

Register NowDONATE
