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X-WR-CALDESC:Events for Arthurs Quest
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DTSTART;VALUE=DATE:20250830
DTEND;VALUE=DATE:20250904
DTSTAMP:20260501T035217
CREATED:20250422T091832Z
LAST-MODIFIED:20250811T144656Z
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SUMMARY:36th International Epilepsy Congress
DESCRIPTION:This event will showcase the best in current knowledge and developments in the epilepsy world. \nSLC6A1 Special Interest Session is bright and early\, 8am to 9.30am Monday 1st September. \nSpecial Interest Session 3\nSession title: Epilepsy and neurodevelopmental comorbidities of SLC6A1-related disorders \nChair: Vincenzo Crunelli (United Kingdom) \nParenting siblings with SLC6A1 mutations and strategy of patient organisations – Lindsay Randall (United Kingdom) \nFrom genotype to protein structure to phenotype in SLC6A1-related disorders – Dennis Lal (USA) \nNon-seizure characteristics of SLC6A1-related neurodevelopmental disorders – Katrine Marie Johannesen (Denmark) \nSLC6A1 function in health and disease using GABASnFR – Chris Dulla (USA) \nTargeting astrocytic GAT1 dysfunction rescues absence seizures and their comorbidities – Tatiana Morais (Portugal) \nRegister for the event here: \nhttps://www.ilae.org/congresses/36th-international-epilepsy-congress/section/sectionid/3 \nSCIENTIFIC REGISTRATION
URL:https://slc6a1connectuk-aq.org/event/36th-international-epilepsy-congress/
LOCATION:Lisbon\, 36th International Epilepsy Congress\, Lisbon\, Portugal
ATTACH;FMTTYPE=image/jpeg:https://slc6a1connectuk-aq.org/wp-content/uploads/2025/04/36th_International_Epilepsy_Congress-2.jpg
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DTSTART;VALUE=DATE:20250907
DTEND;VALUE=DATE:20250908
DTSTAMP:20260501T035217
CREATED:20250811T145118Z
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SUMMARY:Dragon Boat Race 2025
DESCRIPTION:This year Arthur’s Quest has teamed up with friend and supporter Gavin Boyce\, who is also supporting the Carly Heart Trust and slc6a1 connect uk after a close shave with the other side many years ago. Thanks to advanced technology\, his ticker is kept on track by an internal defibrillator. We will be sharing our boat and proceeds from this high speed thrill ride of a fundraiser. \nSupport us with sponsorship\, and join us on the day at: \nTonbridge Castle riverside\, Kent\, UK. Sunday 7th September 2025.\nSee our peoples fundraising page for details.
URL:https://slc6a1connectuk-aq.org/event/dragon-boat-race-2025/
LOCATION:Watergate (Big Bridge) Tonbridge High Street.\, The Big Bridge\, Tonbridge\, TN9 1DR
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20251027
DTEND;VALUE=DATE:20251030
DTSTAMP:20260501T035217
CREATED:20250811T155537Z
LAST-MODIFIED:20250811T155537Z
UID:1363-1761523200-1761782399@slc6a1connectuk-aq.org
SUMMARY:The World Orphan Drug Congress 2025 | Workshop Day
DESCRIPTION:THE MOST IMPORTANT ORPHAN DRUG EVENT WORLDWIDE\n27 October 2025 | Workshop Day\n28-29 October 2025 | Conference & Exhibition\nRAI Congress Centre\, Amsterdam\nStrategy\, Advocacy & Partnering For The Global Orphan Drug Industry\nRegister Now \n– \nThe World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe. \nFrom cell and gene therapy\, genetic testing\, and market access\, to real world evidence\, this one meeting covers the whole orphan drugs value chain where science\, government and manufacturers all come together to create groundbreaking progress. \nWe will continue to cover orphan drug progress in: \nCell & Gene Therapy \nGene Testing \nMarket Access \nEpidemiology & Forecasting \nReal World Evidence \nGlobal Patient Advocacy \nOrphan Drugs Policy \nand more \n\nDONATE
URL:https://slc6a1connectuk-aq.org/event/the-world-orphan-drug-congress-2025/
LOCATION:RAI Congress Centre\, Amsterdam\, RAI Congress Centre\, Europaplein 24\, 1078 GZ Amsterdam\, Amsterdam\, Netherlands
ATTACH;FMTTYPE=image/jpeg:https://slc6a1connectuk-aq.org/wp-content/uploads/2025/08/Orphan_Drug_Congress-2025-RAI_Amsterdam.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20251205
DTEND;VALUE=DATE:20251210
DTSTAMP:20260501T035217
CREATED:20250811T152400Z
LAST-MODIFIED:20250811T152628Z
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SUMMARY:AES Annual Meeting 2025
DESCRIPTION:The AES Annual Meeting brings together healthcare providers\, scientists\, advocates\, industry\, and other professionals dedicated to better outcomes for people with epilepsy. \nWe look forward to exchanging ideas\, sharing and celebrating scientific breakthroughs\, and building professional connections that sustain and strengthen our field and our impact as a global epilepsy community. Join us. \nJoin us in Atlanta this December for the best in epilepsy education\, science\, and networking! \n\n\nThe AES Annual Meeting brings together healthcare providers\, scientists\, advocates\, industry\, and other professionals dedicated to better outcomes for people with epilepsy. \nThe AES Annual Meeting is the premier event for healthcare providers\, scientists\, advocates\, industry\, and other professionals dedicated to better outcomes for people with epilepsy. \nThe meeting boasts five days of top-notch live educational content\, cutting-edge science\, new tools and technologies\, and energy and community you won’t find anywhere else. \nRegister Now\nRegister and book your hotel today—rooms are booking quickly! \nJoin us in December for the largest epilepsy-focused event in the US. \nEnjoy top-notch learning that will help you stay on the cutting edge of epilepsy science and care—no matter your career stage! In-person and on-demand options are available. \n\n\nRegister NowDONATE
URL:https://slc6a1connectuk-aq.org/event/aes-annual-meeting-2025/
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