Arthurs Quest

The World Orphan Drug Congress 2025 | Workshop Day
2025-10-27 - 2025-10-29 | RAI Congress Centre, Amsterdam, RAI Congress Centre, Europaplein 24, 1078 GZ Amsterdam, Amsterdam, Netherlands
THE MOST IMPORTANT ORPHAN DRUG EVENT WORLDWIDE
27 October 2025 | Workshop Day
28-29 October 2025 | Conference & Exhibition
RAI Congress Centre, Amsterdam
Strategy, Advocacy & Partnering For The Global Orphan Drug Industry
Register Now
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The World Orphan Drug Congress is the largest and most established orphan drug & rare disease meeting of its kind across the globe.
From cell and gene therapy, genetic testing, and market access, to real world evidence, this one meeting covers the whole orphan drugs value chain where science, government and manufacturers all come together to create groundbreaking progress.
We will continue to cover orphan drug progress in:
Cell & Gene Therapy
Gene Testing
Market Access
Epidemiology & Forecasting
Real World Evidence
Global Patient Advocacy
Orphan Drugs Policy
and more

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Dragon Boat Race 2025
2025-09-07 | Watergate (Big Bridge) Tonbridge High Street., The Big Bridge, Tonbridge, TN9 1DR
This year Arthur’s Quest has teamed up with friend and supporter Gavin Boyce, who is also supporting the Carly Heart Trust and slc6a1 connect uk after a close shave with the other side many years ago. Thanks to advanced technology, his ticker is kept on track by an internal defibrillator. We will be sharing our boat and proceeds from this high speed thrill ride of a fundraiser.
Support us with sponsorship, and join us on the day at:
Tonbridge Castle riverside, Kent, UK. Sunday 7th September 2025.
See our peoples fundraising page for details.

36th International Epilepsy Congress
2025-08-30 - 2025-09-03 | Lisbon, 36th International Epilepsy Congress, Lisbon, Portugal
This event will showcase the best in current knowledge and developments in the epilepsy world.
SLC6A1 Special Interest Session is bright and early, 8am to 9.30am Monday 1st September.
Special Interest Session 3
Session title: Epilepsy and neurodevelopmental comorbidities of SLC6A1-related disorders
Chair: Vincenzo Crunelli (United Kingdom)
Parenting siblings with SLC6A1 mutations and strategy of patient organisations – Lindsay Randall (United Kingdom)
From genotype to protein structure to phenotype in SLC6A1-related disorders – Dennis Lal (USA)
Non-seizure characteristics of SLC6A1-related neurodevelopmental disorders – Katrine Marie Johannesen (Denmark)
SLC6A1 function in health and disease using GABASnFR – Chris Dulla (USA)
Targeting astrocytic GAT1 dysfunction rescues absence seizures and their comorbidities – Tatiana Morais (Portugal)
Register for the event here:
https://www.ilae.org/congresses/36th-international-epilepsy-congress/section/sectionid/3
SCIENTIFIC REGISTRATION

SLC6A1 Europe 2025 Inaugural Scientific Symposium and Family Conference
2025-08-29 | Vila Gale Opera, Vila Gale Opera, Travessa Conde Da Ponte, Lisbon,, Lisbon, 1300-141, Portugal
Welcome to the INAUGURAL EUROPEAN SYMPOSIUM SLC6A1! Join us for an exciting in-person gathering at Hotel Vila Galé Ópera. This symposium is a fantastic opportunity to delve into the latest research and advancements in SLC6A1 related disorders. Connect with fellow professionals, share insights, and collaborate on potential treatments and ground breaking ideas. Engagement with families affected by SLC6A1 in the family room and Rare Reception will offer greater understanding and insight in to the disease phenotype and the unmet needs of this community, as well as amplifying the patient voice. Don’t miss out on this unique event!
There will be two presentation rooms at the event, a family room and a scientific room.

The family room will present research and scientific projects in a way that is broken down into less scientific jargon, so that it is more accessible to the family community.
The scientific room will allow researchers and alike to really showcase their projects in greater detail to a multidisciplinary audience, offering rich opportunity for further sharing, collaboration and partnership. Ultimately aiming to push boundaries and change lives for the SLC6A1 community.
Families are invited to attend a family bonding day on August 28th, starting out at the event hotel at 10am. The symposium team will facilitate the initial meeting, encouraging families to take up this unique opportunity to meeting and build lasting relationships with other families that have experienced exactly the experiences as eachother. Learn, share and support eachother.
Children are also welcome at the event, although we understand some may find the environment of the symposium a challenge (or just plain boring!). Once you have made some connections, you are free to explore what Portugal has to offer and venture out together. There is a large park near the hotel.
Join us for a Rare Reception in or close to the symposium venue. Offering a unique opportunity for families and professionals to unwind, mingle and get to know each other, learn from each other and foster collaboration in a fun and relaxed atmosphere.

Scientific registration is for :
1 day – 8.00am to 5.00pm
Includes light breakfast of pastries, hot and cold drinks, lunch, coffee breaks, and full agenda of scientific presentations and networking opportunities, plus the chance to meet families affected by SLC6A1
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Family Registration is for:
2 days
Families are invited to attend on the 28th August for an informal day of meeting other families and bonding. Some families will bring their SLC6A1 loved ones with them, others will leave them at home, and everyone is welcome.
29th is the family conference which includes:
8.00am to 5.00pm conference
Includes light breakfast of pastries, hot and cold drinks, lunch, coffee breaks, and full agenda of scientific information presented in an accessible way for the patient community. Opportunities to mingle with other families, ask questions and meet the experts trying to navigate the way to therapies for our loved ones, that address the unmet needs of SLC6A1 related disorders.
There will be an accessible respite room for families to take breaks in throughout the day as needed.
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Book Your Room:
25 rooms are available at the hotel.
Click here to view available options.
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Rare Reception:
Drinks reception 5pm to late, venue tbc.
Register your interest in attending this Rare Reception in or close to the symposium venue. Offering a unique opportunity for families and professionals to unwind, mingle and get to know each other, learn from each other and foster collaboration in a fun and relaxed atmosphere.
FREE
SCIENTIFIC REGISTRATIONFAMILY REGISTRATIONBOOK YOUR ROOMRARE RECEPTION

AES Annual Meeting 2024
2024-12-06 - 2024-12-10
Join us in Los Angeles this December for the best in epilepsy education, science, and networking!
The AES Annual Meeting brings together healthcare providers, scientists, advocates, industry, and other professionals dedicated to better outcomes for people with epilepsy.
Information about AES 2024 will be available soon. Sign up here to receive an email notification when registration opens!
The AES Annual Meeting is the premier event for healthcare providers, scientists, advocates, industry, and other professionals dedicated to better outcomes for people with epilepsy.
The meeting boasts five days of top-notch live educational content, cutting-edge science, new tools and technologies, and energy and community you won’t find anywhere else.

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SLC6A1connect symposium 2024
2024-12-04 - 2024-12-05
Details TBC soon

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The World Orphan Drug Congress 2024
2024-10-22 - 2024-10-25 | Fira de Barcelona – Montjuïc – Hall 2, C/ de Lleida, 4, (Entrance off Lleida Street), Barcelona, Select a State:, 08004, Spain
THE MOST IMPORTANT ORPHAN DRUG EVENT WORLDWIDE
The World Orphan Drug Congress is an award-winning event with an exhibition that has grown to become the largest and most established orphan drugs & rare diseases meeting of its kind across the globe.Following a record attendance in 2023 of 1500+ attendees, the World Orphan Drug Congress will be back in October 2024 bringing together the most senior and informed industry experts across the entire orphan drug and rare disease landscape.​
We will continue to cover orphan drug progress in:
Cell & Gene Therapy
Gene Testing
Market Access
Epidemiology & Forecasting
Real World Evidence
Global Patient Advocacy
Orphan Drugs Policy
and more
From basic research to commercial manufacture, this one meeting covers the​ whole orphan drugs value chain where science, government and manufacturers all​ come together to create ground- breaking progress.​If you are involved in orphan drugs & ATMP, this is the​ most important meeting you will be part of in 2024.​
HOW TO GET THERE
How to get there – Guest Events (firabarcelona.com)

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15th European Epilepsy Congress
2024-09-07 - 2024-09-11 | The Roma Convention Center La Nuvola, Viale Asia, 40 /44, Roma, Metropolitan City of Rome Capital, 00144, Italy
Arthur’s Quest, European SLC6A1 counterparts, researchers and clinicians will come together for an informative 90 minute educational session covering 4 or 5 topics spanning the work being done to improve outcomes for people with SLC6A1. Lindsay Randall will be chairing this event.

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Dragon Boat Race
2024-09-01 | Watergate (Big Bridge) Tonbridge High Street., The Big Bridge, Tonbridge, TN9 1DR
Dragon Boat Race – poster attached – September 1st, 2024. Arthur’s Quest has teamed up with fellow disability charity Space 2 be me (www.space2beme.org.uk) to win the Tonbridge annual Dragon Boat Race on the River Medway. This will be an exciting fundraising competitive event, as teams battle it out through several heats to win the competition. We will have a total of 17 people in any one race, including 16 paddlers and a pace keeping drummer. We will have a stand along the castle wall, which will also be the teams base. This is a free event, so please do come along and support us on the day!
If you are interested in being part of the team, please get in touch here.
We must mention our proud event sponsors, without their support the event would not be possible. A huge thank you to:

Verdigris – offering casual riverside dining at its best! Relax by the river overlooking Tonbridge Castle and watch the world go by. Food and our kitchen is the very heart of Verdigris. We really truly believe this. With our new adventure in food we are looking at local and seasonal dishes designed to share with friends, family and loved ones. Our menu will adapt with the seasons and availability of produce. This is the way we wish to be…. always changing, always moving, always exciting. Life can be a beautiful journey and we believe wine should be too, and so we have a masterfully created wine list available, as well as expertly prepared cocktails.

Widgit – InPrint 3 | Design Symbol Materials to Print : We are Widgit, a pioneering software company with a passion for symbols-based communication. We empower individuals to express themselves independently through symbols, aiding comprehension and understanding across any environment. We primarily cater to individuals with communication difficulties of all ages, including autistic people, learning disabilities, and speech impairments. Our solutions are designed to support educators, therapists, and caregivers by enhancing inclusive learning environments while promoting meaningful interactions. (logo attached)
Our Widgit Online and InPrint software give users access to our entire symbol language, designed to meet the unique needs of symbol users across a multitude of settings. From flashcards to vocabulary lists to fully symbolised books, our solutions make it easy to personalise a wide range of materials – helping to facilitate communication in the everyday world.

BIGBLUE – We deliver executive search and recruitment expertise to the design, property, and construction industry. Our extensive experience and unrivalled market knowledge have helped build the teams behind leading companies in the design and construction industry today. (logo attached)
The recruitment process should be an enjoyable and efficient experience for all involved.
Genial consultants attract like-minded candidates. Our key driver is transforming the way people work by connecting two dynamic forces together; that is when things start to get exciting and workplace transformation can begin.

Absolute Creative Print – Digital Printing Solutions in Kent : Absolute Creative Print have been designing and printing across Kent and the South East since 2010, with a great ethos where no job is too big or small. With continued investments in the latest technology, we have transformed from a small copy shop to an on-demand design, print and display company. Working on a variety of projects, we are here to assist and work alongside you to create the best possible solution for your business. (pending logo)

Control Energy Costs Ltd – Control Energy Costs has been in the energy business since 1981, this means we truly understand the energy market. Our business is to provide you with a complete end-to-end energy service. We support clients with the implementation of carbon solutions to drive Net Zero, as well as mitigate the uncertainty of fluctuating energy costs, identify savings opportunities, manage consumption effectively and undertake utility connections and siteworks projects.

Golf Day @NIZELS Hildenborough
2024-07-05 | NIZELS, Nizels Golf & Country Club, Nizels Lane,, Hildenborough, Kent, TN11 8NU, United Kingdom
Enjoy a light breakfast at Nizels indoor/outdoor restaurant and bar, before heading out to play 18 holes at this stunning parkland championship course in the Kent countryside. Measuring 6,361 yards from the back tees, Nizels consists of five Par 5s and five Par 3s, giving golfers of all abilities the chance to make a good score. The course has played host to the Henry Cooper Junior Masters since 1998. Can you keep your ball out of the three course lakes?
Also includes; lunch, games and prizes and a raffle.
Friday 28th June – £99 – Tea, Coffee and Bacon Baguettes & 18 holes (parking available on site).

Please email contact@arthursquest.org for tickets.

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Dinner and Dance @NIZELS Hildenborough
2024-06-08 | NIZELS, Nizels Golf & Country Club, Nizels Lane,, Hildenborough, Kent, TN11 8NU, United Kingdom
Enjoy welcome drink on arrival, a 3 course meal with Tea and Coffee, followed by a DJ to entice you on to the dancefloor to shake the week off at Nizels Golf & Country Club on Saturday June 8th, 2024 – £60pp (parking available on site). There will be a charity raffle sold and drawn on the evening, with some fabulous prizes from local businesses in the Tonbridge and Malling community. We will be using the event to say a huge thankyou to Cllr James Lark for his support in choosing Arthur’s Quest as his charity of the year 23/24, which ends on May 14th 2024.

Please email contact@slc6a1connectuk-aq.org for tickets.

A huge thank you to these businesses for supporting our charity dinner dance on Saturday 8th June at Nizels. Without the generosity of local businesses, friends, family, and larger organisations further afield, running fundraising events would feel impossible. THANK YOU!
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Online Raffle – 6th March at 8pm
2024-03-06 20:00 - 20:30 (Europe/London)
WIN FANTASTIC PRIZES – with thanks to local Tonbridge businesses and community.
Arthur’s Quest are pleased to announce that, with some very generous donations from Tonbridge businesses, we are excited to be holding our very first Rare PrizeDraw!
All proceeds will go directly towards researching treatments for rare disease SLC6A1.
Tickets can be purchased through the PayPal QR code, or the Crowdfunder event attached: https://www.crowdfunder.co.uk/…/arthursquest-prizedraw…
£5 per strip of 5 tickets. Many prizes are for local Tonbridge use.We would like to thank all the donors and our supporters.
We will run a live draw on our Instagram #arthursquestcharity on March 6th at 8pm-and winners will then be contact by email. Good luck!!!

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iDR24
2024-03-06 - 2024-03-07 | RECINTE MODERNISTA DE SANT PAU, C/ de Sant Quintí, 89 Horta-Guinardó, Barcelona, 08025, Spain
#iDR24 offers an opportunity to explore & engage with content across 3 paths. One of these paths is RARE DISEASES which will cover:

Session #1: “Why care about repurposing for rare diseases?”
Session #2: “Leading a drug repurposing project”
Session #3: “The evolving rare disease landscape: past, present, and future”

Lindsay Randall will presenting on the 7th March on innovating, connecting and reshaping drug repurposing.
View the sessions and get your tickets: https://lnkd.in/dXTwTK7D
#iDR24 #RareDiseases #LightningTalks #DrugRepurposing #PatientAdvocacy

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Rare Disease Day 2024 #lightupforrare
2024-02-08
Everyone can participate in the Global Chain of Lights and Share Your Colours!
In an effort of global solidarity, you are invited to light or decorate your home with the Rare Disease Day colours at 7 PM your local time on 29 February 2024.
You can use garlands, social media filters, candles, disco lamps, colourful decorations… Let your creativity shine!
We suggest you take a picture of yourself with the illuminations or decorations you chose and publish it on your social media using our “Global Chain of Light” filters and #rarediseaseday.
We have prepared information and instructions for you in the attached document. Print it out or email it to friends!
Cover picture for the Light Up For Rare instructions
https://download2.rarediseaseday.org/…/lightupforrare…
There is also a film for you to play on your TV or your laptop. Take a look and play it from your window!
https://download2.rarediseaseday.org/…/lightupforrare…
You can also download the #lightupforrare video to your computer.
By Sharing Your Colours and shining a beacon from your home, office or your town, you are participating in awareness-raising and showing your solidarity. Collectively, we aim to change and improve the lives of 300 million people worldwide.
Though Rare Disease Day is community-led, everyone, including individuals, families, caregivers, healthcare professionals, researchers, clinicians, policymakers, industry representatives and the general public can participate in raising awareness and taking action today for this vulnerable population who require immediate and urgent attention.
#slc6a1 #epilepsyawareness #arthursquestcharity #rarediseaseday2024 #drugrepurposing #raredisease #Space2BeMe

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QUIZ NIGHT – Mayoral event
2024-02-08
Quiz Night!
TOFS (aka @TonbridgeOldFireStation) hosted a charity quiz night along with Cllr James Lark, Mayor of Tonbridge and Malling, in honour of Arthur’s Quest. The night venue was bursting at the seams with dignitary’s and their supporters. Thanks to the amazing audience and the gratuitous hosting, we raised over £800.

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Epilepsy and Rare Disease Awareness and Fundraiser
2024-02-01 - 2024-03-31
Epilepsy and Rare Disease Awareness and Fundraiser – FEB/MARCH 2024

2nd Tonbridge Scouts, Cubs and Beavers will be conducting a carousel teaching session covering epilepsy awareness, epilepsy first aid, and some information about rare disease and inclusive behaviour. They will be tasked with disseminating their new knowledge to friends and family, in exchange for £1 coins to fill their Smartie tubes.

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SLC6A1connect symposium 2023
2023-11-30
Save The Date
Please save the date for the 2023 SLC6A1 Connect International Symposium. The symposium will be held on November 30th, 2023 in Orlando, Florida.
This year, we plan to have two different tracks. One is aimed purely at scientists and doctors while the other is designed solely for parents. Scientists, doctors and resources will be presenting curated material that will help educate us as a community and allow ample time for questions.
Would you like to help? Do you have a talent? Reach out! If you have a talent, we have the need.
We have MANY sponsorship slots available. Please pass this document along!
Videos from the 2023 SLC6A1 Symposium Scientific Track now available:
https://slc6a1connect.org/2024/01/28/2023-slc6a1-connect-symposium-science-track-videos-now-available/

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RexPo - RePo4EU
2023-10-25 - 2023-10-26 | Elite Palace Hotel, Sankt Eriksgatan 115, 113 43, Stockholm, Sweden
Save The Date

The REPO4EU Horizon Europe project currently building a European/Global Platform and Infrastructure for Drug Repurposing
will host its 2nd International Conference on Systems Medicine, Artificial Intelligence and Drug Repurposing and you cannot miss it!
Building on the success of our first conference last year in the city of Maastricht, we are delighted to present the next step in this journey…
RExPO23 is the second installment in the RExPO annual conference series and will take place in Stockholm, Sweden, from October 25-26
THIS IS REXPO23

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4th Annual Markets and Markets Orphan Drugs and Rare Diseases Conference
2023-10-09 - 2023-10-10 | IBIS London Earls Court Hotel & ILEC Conference Centre, 47 Lillie Rd, London, SW6 1UD, United Kingdom
SAVE THE DATE

With the enforcement of the 1983 Orphan Drug Act (ODA), manufacturers are obliged to scale production to treat rare/orphan diseases, leading to a drastic advancement in the landscape of orphan drugs. Novel therapies aimed at treating these uncommon diseases are paramount to fulfilling the unmet needs of patients.

The present-day challenges, including constrained resources, disease severity, limited patient access, and a lack of available knowledge in rare diseases, necessitate the discovery of innovative solutions to hasten orphan drug development.
The 4th Annual MarketsandMarkets Orphan Drugs and Rare Diseases Conference, to be held on October 9–10 at Ibis London Earls Court Hotel & ILEC Conference Centre, aims to provide a valuable and broad platform to discuss recent advances in the development of life-saving therapies, critical issues, and strategies to enhance orphan drug development in near future. The conference will bring together scientists, researchers, entrepreneurs, academicians, medical officials, and technologists across the globe to discuss the newest findings in the areas of rare diseases and orphan drugs, helping to shape present and upcoming challenges in drug analysis. It gives participants the chance to interact with industry peers and participate in this scientific conference while staying informed about the most recent developments in the study of rare diseases.

events.marketsandmarkets.com

International League Against Epilepsy congress 2023
2023-09-02 - 2023-09-06 | The Convention Centre Dublin, Spencer Dock, North Wall Quay, Dublin, Ireland
SLC6A1 patient advocacy groups from around the world united in Dublin for the International League Against Epilepsy congress 2023.
What a truly wonderful and exciting opportunity to meet some of our SLC6A1 family to speak with scientists, doctors, and researchers already doing wonderful work to help our cause, but also to bring them together with a wider network of specialists, to inform, to educate and to raise awareness. Meeting with Katty Kang from Vanderbilt who discovered the impact of phenylbutyrate on the slc6a1 pathway was particularly exciting. What an amazing human being. Better treatments are coming. Gene therapy is coming. GAT1 is firmly on the map! @arthursquest #slc6a1connectuk www.arthursquest.org #slc6a1 #slc6a1connect #slc6a1connetitalia #slc6a1connectbelgie #meesterbrein #slc6a1connectspain

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Model Railway Tonbridge
2023-08-05 | Tonbridge Miniture Railway, The Old Power Station, 26 The Slade, Tonbridge, TN9 1HR, United Kingdom
Model Railway Tonbridge – 5th August 2023 – The miniature railway in the Town of Tonbridge, which is a favourite attraction of Arthur and his sister as they ride around pointing at all the squirrels as they go, is donating some profits from this days sales.
A huge thank you for your support!

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Classic Car Ride Out
2023-07-23
Classic Car Ride Out – A mayoral event raising money and the profile of AQ. This is a private event taking place on Sunday 21st July 2023.
A big thank you to all the classic car lovers for taking part and supporting us!

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BIGBLUE - 3 Peak Challenge, 24th September 2022.
2022-09-24 | Three Peaks Challenge Yorkshire, PH33 6ST, United Kingdom
A huge thankyou to the team at BIGBLUE recruitment consultancy for supporting our charity by climbing the 3 Peak Challenge in 24hours. It was a gruelling event for them, but they all did brilliantly, despite the obvious physical punishment. The team raised over £4,000 towards our research and development.

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Hampton Court Half Marathon
2022-03-20 09:00 - 17:30 UTC | Hampton Court Palace, Hampton Ct Way, East Molesey, KT8 9AU
‘Ten amazing humans have signed up to complete the Hampton Court half marathon on March 20th 2022 in support of Arthur’s Quest, most of whom are new to running. This means a merciless training regime throughout the depths of UK winter, blisters, chapped lips, frosty fingers and windburned cheeks. Why are they putting themselves through all that?
Arthur is 5 years old and suffers from a rare neurological condition known only by the gene code SLC6A1. This condition causes a rare form of epilepsy which is extremely hard to treat, autism, muscle weakness, learning disability, speech and language delay/difficulty, behavioural changes and regression and the children require speech therapy, Physio, Occupational Therapy, specialist school provision and endless appointments. The genetic change was found in 2015 and Arthur was diagnosed in 2018. Arthur’s parents tested negative for the gene, and despite that, his baby sister was diagnosed age 1 in 2020. It has taken a year of falling over from drop seizures, facial injuries, a lost tooth and several medication changes to finally get some control of her seizures with a cocktail of anti epileptic drugs. There are currently hundreds of children diagnosed across the globe with this condition, and more get diagnosed every day. Scientists and doctors have taken interest in the speed at which people are being diagnosed, and the spectrum of disabilities experienced by the sufferers. The studies done on the condition to date estimate the condition to affect 1:3500 births, and is the 10th cause of autism and 6th cause of epilepsy.
Parents have rallied together and in the last 4 years, they have work tirelessly to raise money to fund research for better treatments and a cure, and it is working. Data collection and research to treat and cure this disease is taking place at UT Southwestern, University of Pennsylvania, Uplifting Athletes, Gladstone institutes, University of California at San Francisco, Collaborations pharmaceuticles, Cyclia, University of Colorado Boulder, and Vanderbilt University. We currently have 12 children on a drug trial in the US and Europe using a repurposing study for a drug already taken by children for a completely different condition, so far the results are good. These children and young people and their families are suffering on a daily basis. Just when they think things are improving, the children regress and the work starts all over again. A cure cannot come soon enough! This is not shooting in the dark, the science is already happening, the contacts have already been made, but what they do need is money to keep it going, to reach the end goal, before irreversible neurological damage sets in.
So come out and support the team, donate to this amazing cause, warm the runners up with your kindness and your generosity.
It will be appreciated more than you could know’.
Want to know more? Visit www.arthursquest.org and www.slc6a1connect.org

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£1 Cure Challenge
2020-11-01 - 2021-11-30
A national campaign to cure children with rare neurological condition SLC6A1.
DONATE JUST £1 TODAY NOVEMBER IS NATIONAL EPILEPSY MONTH.
SLC6A1 IS A LEADING CAUSE OF EPILEPSY BY GENETIC CHANGE. LET’S MARK THE EVENT AND FUND THE RESEARCH TO CURE THIS CHILDHOOD DISEASE! HELP MAKE THIS EVENT A NATIONAL SUCCESS BY DONATING £1 TODAY AND SHARING ON SOCIAL MEDIA AND WITH YOUR CONTACTS.

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Tonbridge Half Marathon Day
2020-07-31 | Judd School, Brook Street, Tonbridge, Kent, TN9 2PW, United Kingdom
Today was Tonbridge half marathon day and it started off tipping it down, it was not looking good, but just in time the sun came out and the rain stopped.
The team were in good spirits despite some nerves for the novices. The hills were tough, but they all did so great, finishing between 1hr 57 and 2hr 29.
Arthur watched with a heavily pregnant Mummy (whose waters broke the next day!) and friends on the sideline, but was able to fit in a quick game of golf once the runners were out of sight. A truly great result. Celebrations were had post run at the Poacher & Partridge.
The team raised to date £2,400 for arthursquest.org all of which went to research for the gene therapy needed to cure Arthur’s rare disorder at UT Southwestern.
A huge thank you to the lovelies that ran for us today.

Fosse Bank Association Quiz Night - ON HOLD
2020-06-03 19:00 - 22:30 UTC | Fossse Bank School, Noble Tree Rd, Hildenborough, Tonbridge, TN11 8ND, United Kingdom
Apologies, but this event is currently on hold due to Covid-19. As soon as we have more information, we’ll ket you know.

Pounds for Pedals
2020-06-01 00:00 - 2020-09-30 00:00 UTC
Support Arthur’s 4 mile journey on his new balance bike to raise money for research to cure his disease.
Thanks for visiting my fundraising page!

Please help me support SLC6A1 Connect by making a donation through my page. The process is fast, easy and secure. Arthur suffers from this disease and struggles with epilepsy, movement disorder and developmental delay. It will be a wonderful day when Arthur completes this challenge. Thanks so much for your support… and please don’t forget to send this page to any friends you think might be interested in donating!

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Fosse Bank Association Quiz Night
2020-05-06 19:00 - 22:30 UTC | Fossse Bank School, Noble Tree Rd, Hildenborough, Tonbridge, TN11 8ND, United Kingdom
Wow – thank you so much to the Fosse Association who have raised £210 for Arthur’s Quest at their fantastic quiz night – a great night was had by all and the kind donations of parents and friends will be used to further research into gene replacement therapy for our children.

Fosse Bank School 'Own Clothes day'
2020-02-28 | Fossse Bank School, Noble Tree Rd, Hildenborough, Tonbridge, TN11 8ND, United Kingdom
A huge thank you to Fosse Bank School who raised £166 for Arthur’s Quest on their ‘own clothes day’. We appreciate their support as always.
