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X-ORIGINAL-URL:https://slc6a1connectuk-aq.org
X-WR-CALDESC:Events for Arthurs Quest
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DTSTART;VALUE=DATE:20240201
DTEND;VALUE=DATE:20240401
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UID:798-1706745600-1711929599@slc6a1connectuk-aq.org
SUMMARY:Epilepsy and Rare Disease Awareness and Fundraiser
DESCRIPTION:Epilepsy and Rare Disease Awareness and Fundraiser – FEB/MARCH 2024\n \n2nd Tonbridge Scouts\, Cubs and Beavers will be conducting a carousel teaching session covering epilepsy awareness\, epilepsy first aid\, and some information about rare disease and inclusive behaviour. They will be tasked with disseminating their new knowledge to friends and family\, in exchange for £1 coins to fill their Smartie tubes. \n\n\nDONATE
URL:https://slc6a1connectuk-aq.org/event/epilepsy_and_rare_disease_awareness_and_fundraiser/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20240208
DTEND;VALUE=DATE:20240209
DTSTAMP:20260430T010312
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UID:794-1707350400-1707436799@slc6a1connectuk-aq.org
SUMMARY:QUIZ NIGHT – Mayoral event
DESCRIPTION:Quiz Night!\nTOFS (aka @TonbridgeOldFireStation) hosted a charity quiz night along with Cllr James Lark\, Mayor of Tonbridge and Malling\, in honour of Arthur’s Quest. The night venue was bursting at the seams with dignitary’s and their supporters. Thanks to the amazing audience and the gratuitous hosting\, we raised over £800. \n\n\nDONATE
URL:https://slc6a1connectuk-aq.org/event/tonbridgeoldfirestation/
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DTSTART;VALUE=DATE:20240208
DTEND;VALUE=DATE:20240209
DTSTAMP:20260430T010312
CREATED:20240223T165850Z
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UID:812-1707350400-1707436799@slc6a1connectuk-aq.org
SUMMARY:Rare Disease Day 2024 #lightupforrare
DESCRIPTION:Everyone can participate in the Global Chain of Lights and Share Your Colours! \nIn an effort of global solidarity\, you are invited to light or decorate your home with the Rare Disease Day colours at 7 PM your local time on 29 February 2024. \nYou can use garlands\, social media filters\, candles\, disco lamps\, colourful decorations… Let your creativity shine! \nWe suggest you take a picture of yourself with the illuminations or decorations you chose and publish it on your social media using our “Global Chain of Light” filters and #rarediseaseday. \nWe have prepared information and instructions for you in the attached document. Print it out or email it to friends! \nCover picture for the Light Up For Rare instructions \nhttps://download2.rarediseaseday.org/…/lightupforrare… \nThere is also a film for you to play on your TV or your laptop. Take a look and play it from your window! \nhttps://download2.rarediseaseday.org/…/lightupforrare… \nYou can also download the #lightupforrare video to your computer. \nBy Sharing Your Colours and shining a beacon from your home\, office or your town\, you are participating in awareness-raising and showing your solidarity. Collectively\, we aim to change and improve the lives of 300 million people worldwide. \nThough Rare Disease Day is community-led\, everyone\, including individuals\, families\, caregivers\, healthcare professionals\, researchers\, clinicians\, policymakers\, industry representatives and the general public can participate in raising awareness and taking action today for this vulnerable population who require immediate and urgent attention. \n#slc6a1 #epilepsyawareness #arthursquestcharity #rarediseaseday2024 #drugrepurposing #raredisease #Space2BeMe \n\n\nDONATE
URL:https://slc6a1connectuk-aq.org/event/events_rare_disease_day_2024/
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